Executive Summary
The Palliative Care – Heart Failure Education And Research Trials (PC-HEART) Collaborative is a research network formed in 2003 as an outgrowth of the consensus conference on Palliative and Supportive Care in Advanced Heart Failure.
The Palliative Care – Heart Failure Education And Research Trials (PC-HEART) Collaborative is a research network formed in 2003 as an outgrowth of the consensus conference on Palliative and Supportive Care in Advanced Heart Failure.
The collaborative includes senior researchers from leading academic medical centers with active Heart Failure research and treatment programs, many of which have established Palliative Care programs. It is a major outreach effort of Patient-centered Education and Research, Inc., a 501(c)(3) non-profit organization based in Salt Lake City.
PC-HEART has been funded in part by a grant from the Robert Wood Johnson Foundation to develop an ongoing structure that permits development and initiation of education and multi-center clinical research efforts to understand how best to manage symptoms and meet the needs of patients with advanced heart failure and their families. PC-HEART has also received much-appreciated funding from other important organizations.
PC-HEART has an ambitious research agenda which participating sites can join. PC-HEART will also be a source through which sites can contribute patients to projects developed by individual investigators.
Because no one center cares for large enough numbers of patients with advanced heart failure to study palliative and supportive care in advanced heart failure, the PC-HEART collaborative uniquely fulfills a key need in the effort to understand and optimize care for heart failure.
See in particular our publications.
Patient-Centered Education and Research, Inc., PC-HEART’s parent organization, was formed in May 2003 as a non-profit corporation to conduct studies to improve patient-centered care. Patient-centered care focuses on understanding patient preferences and manage symptoms to the level of comfort desired. It attempts to reduce the burden of illness on the patient and their family.
Contributions to Patient-centered Education and Research, Inc. are tax-deductible, in accordance with Section 501(c)(3) of the Internal Revenue Code of 1986.
We have a special internal working group called Hospice-PC Clinicians. If you’re interested in joining this group, register at our site and then email Sarah Goodlin about your interest so she can admit you.
Created: December 15, 2003 11:28
Last updated: December 11, 2008 11:10